Wellllll well well. Day one is officially behind us. And I will admit I had a bunch of anxiety leading up to this day. Obviously since we completed dairy I trust the process, but having been hospitalized for peanut ingestion before, it was a major mental hurdle for me to do this voluntarily! We are lucky to have a huge support system, including my family, and friends, and facebook group…all cheering us on and lifting me up through this. And now we have done it! We have begun!
We had a normal start to the day with a bowl of oatmeal followed by his milk dose and then we were off to Fremont.
Kyle came with us for this first one, so that was nice.
He started with a 1/1000 dilution of peanut powder (in cellulose powder) which he had a minuscule amount of, and he completed four (!!) updoses in that first appointment on Friday. We will likely go every other week to really allow his body an extra long time to desensitize to the dose they send him home on.
So now I have a bunch of these little cups of powdered cellulose/peanut to mix into applesauce or yogurt or whatever.
So far so good (some nasal drip but no congestion or meds needed after Saturday morning’s dose).
He is probably getting the equivalent of a grain of flour’s worth of peanut protein but you have to start somewhere right? This is going to be a long road, but if the end is freedom then I am all in! I will happily trade in my fear of hospitalization for a year or so of these MD appointments.
All I can say is my heart was in my stomach reading this until I read the day had a positive outcome with only a nasal drip and I 🙏🏻 and send ❤️ that this process is easy on his body, and yours regarding your stress level. Your doing such a wonderful thing for him and his future and only a parent can understand how damn unnerving it is on the daily for the parents.
MUAH! I feel such love – thanks for your kind and supportive words 🙂
Go, allergy mama, go!!!! I said it in a previous review but this is a GIFT you are giving him. One day he’ll be able to look back and realize how amazing it is that you did this for him, and he doesn’t have to worry as much about a life-threatening food allergy. You guys are such a strong family, you’re going to get through this no problem 🙂
XXXX. Thank you so so much for such awesome words 🙂
This is awesome! Sending warm wishes to you all for this process — sounds like you got off to a great first day! It’s incredible to see the change with the dairy and think about the freedom from fear over peanut contamination.
This must be such an anxiety provoking experience! But my gosh, even if after treatment he’s able to just have “foods that may have been processed in the same facility as peanuts” that alone would open so many doors to his future. This is the best gift you and kyle could ever give him
I feel the same way. Thanks so much 🙂
Good luck! We are up to 25 micrograms currently with zero symptoms so far. I imagine the higher we go the more anxiety we feel.
When peanut OIT is complete, will you dose at the same time each day and observe the same rest period? I’m so curious since we hope to do OIT for multiple allergies.
We have to separate by 30 minutes from his milk dose, but peanut is only once a day so we just do it at night 30 minutes apart. Not sure if we get to a point where we can dose at the same time – perhaps if we get to maintenance with both…?